Who We Are

Henry

On October 25, 1995, Henry Strongin Goldberg was born. Two weeks later, he was diagnosed with Fanconi anemia, a disease that threatened to take his life, and challenged us to live well despite it.

Henry embraced each opportunity for living completely and reminded the rest of us to do so. His sparkly eyes, mischievous grin and infectious smile was a call to action to smile back, laugh along and dance with him. His ear-to-ear smile and joyous laughter were far more noticeable than his many surgical scars and low-platelet related bruises. He suffered plenty of setbacks and spent more nights in the hospital fighting against whatever Fanconi anemia would throw his way, but just when it looked like the disease was too tough of an opponent, Henry would rise up and get back to the life he chose to lead. He had ice cream for dinner and transitioned from the hospital to running a lemonade stand in a matter of minutes.

On December 11, 2002, the unimaginable happened. Henry died.

Henry is alive and well in our hearts and minds, and every day we strive to be true to the lessons he taught us about the importance of family, friends, love, courage and laughter.

Henry was the master of living well and laughing hard. To honor his life and share his magical way of making each day matter, we founded the Hope for Henry Foundation. Recognizing the uplifting effect laughter and smiles have for thousands of children like Henry, Hope for Henry Foundation strives to fill their recovery time with fun and entertainment.

Founders

Laurie

For 25 years, Laurie Strongin has helped draw attention and resources to issues of emerging national significance. 

She began as a PR professional at Podesta Associates and The Kamber Group, two of Washington DC’s premier public relations firms.  Laurie then took her advocacy expertise to the issue of affordable housing, serving as the Deputy National Coordinator for the Neighborhood Reinvestment Corporation’s Campaign for Home Ownership; and subsequently running Fannie Mae Foundation’s multi-million dollar portfolio to advance homeownership counseling, foreclosure prevention, and asset-building investments.

In 1996, Laurie became drawn through personal experience into the frontlines of a breakthrough medical procedure that held the promise of saving her son, among countless other children.  Turning her advocacy and media skills to that issue, Laurie participated in national medical policy panels (alongside Newt Gingrich and Dr. Bernadine Healy, among others); worked with then-House Democratic Leader Nancy Pelosi and Congresswoman Diana DeGette (D-CO) to urge Senate passage of the Stem Cell Research Enhancement Act; secured coverage of the issue on ABC’s “Nightline” and in a Sunday New York Times magazine cover story; authored “Vetoing Henry,” a Washington Post op-ed criticizing President Bush’s 2006 veto of federal funding for human embryonic stem cell research; and advocated for parental perspectives on NBC, the CBS Early Show, and MSNBC.  In 2009, when President Obama lifted the ban on federal funding for stem cell research, Laurie was one of a few dozen honored guests.

Laurie’s subsequent memoir, “Saving Henry” (Hyperion 2010), has been featured on Good Morning America, The Diane Rehm Show, The Bob Edwards Show, The Dr. Oz Show, and BBC; and featured in USA Today and The Washington Post.  Since its publication, Laurie has headlined over 60 speaking engagements across the U.S.

Allen

Allen, Henry’s dad, is a public relations, marketing and government relations professional. He is the Chief Marketing Officer of College Summit, a national non-profit organization that helps high schools raise their college enrollment rates by building a college-going culture.

Allen began his career in Washington, DC more than 25 years ago working with trade associations for the nation’s broadcasters, grocery stores and food manufacturers. After his time with the industry groups, Allen started working with Internet and hi-tech companies, including VarsityBooks.com, FKF Applied Research (a neuromarketing firm) and XM Satellite Radio.

In addition to serving on the Board of Directors of the Hope for Henry Foundation, Allen has worked with Laurie as a patient advocate for stem cell research and pre-implantation genetic diagnosis. He also helped start the Jewish Rock and Roll Hall of Fame, celebrating the Jewish contribution to popular music. Allen serves on the board of directors of Sela, Washington, DC's new Hebrew language public charter school.

Board of Directors

Abeer Al Otaiba

Honorary Chair
Hope for Henry Foundation, Board of Directors

 

 

Lisa Belkin

Lisa Belkin is National Senior Correspondent for Yahoo News, where she does long-form national reporting on US social issues. A long-time contributing reporter for the New York Times Magazine, she has also been the paper’s Motherlode and Life’s Work columnist, and a reporter on the National, Metro and Business and Style desks. She is also the author of three books, including “Life’s Work: Confessions of an Unbalanced Mom,” "First, Do No Harm," and "Show Me a Hero." 

Amy Squire Buckley

An expert in large-scale program management, marketing, and communications, Amy Buckley has 20 years' experience. Currently she is a Principal at Reingold, a DC-based communications firm. Previously, Amy worked at Varsity Group, where she led the launch of a new business model, am=n e-commerce solution serving educational institutions and their students Amy also was a management consultant with A.T. Kearney, served in the Office of the Secretary at the U.S. Department of Education and as deputy director of Presidential Personnel in the White House. Ms. Buckley received a Bachelor’s degree in Economics from Boston College and has a Master's Degree in Business Administration from the University of Virginia. She lives in Bethesda, MD with her husband, three boys and a black lab.

Laura Caliguiri

Laura is Managing Director, US Public Sector Health and Human Services, Microsoft. She has over 15 years of experience developing and implementing public policy strategies with federal, state, local and tribal officials, industry trade associations and public policy groups.

Abby Cherner

Abby Cherner has significant nonprofit board experience, working with Hope for Henry Foundation, Center for Inspired Teaching and the National Child Research Center. She practiced law at Arnold & Porter after graduating with honors from Georgetown Law Center. Abby now runs her own business, At Home with Abby, lessons in entertaining.

Laura Ginns

Laura Ginns is Hope for Henry’s longest-standing, most active volunteer and supporter. She is a mother of three boys with significant volunteer experience.

 

 

 

Allen Goldberg

Allen, Henry’s dad, is Chief Marketing Officer of College Summit, a national nonprofit that helps high schools raise their college enrollment rates by building college-going culture.

Allen began his career in Washington, DC more than 25 years ago working with trade associations for the nation’s broadcasters, grocery stores and food manufacturers. After his time with the industry groups, Allen started working with Internet and hi-tech companies, including VarsityBooks.com, FKF Applied Research (a neuromarketing firm) and XM Satellite Radio. Most recently, Allen worked as Vice President of  Communications for Neustar, a provider of data and analytic services to the communications, Internet and entertainment industries.

In addition to serving on the Board of Directors of the Hope for Henry Foundation, Allen has worked with Laurie as a patient advocate for stem cell research and pre-implantation genetic diagnosis. He also helped start the Jewish Rock and Roll Hall of Fame, celebrating the Jewish contribution to popular music.

David Jacobsohn, MD

David Jacobsohn, MD, Chief of Bone Marrow Transplant, recently joined Children's National from Children’s Memorial Hospital in Chicago, where he served as a member of the Stem Cell Transplant Program staff and as the Director of the Chronic Graft-versus-Host Disease Clinic. In his first year at Children’s National, he completed fundraising for an outpatient dedicated bone marrow transplant unit, which will open in the fall of 2011. He has also made significant changes to improve patient care, such as adding a program of night-time hospitalists MDs to take care of bone marrow transplant patients. David has lectured widely on GvHD/BMT in Europe, Latin America, and the United States. Dr. Jacobsohn obtained a Bachelor of Science from Yale University, his medical degree from Tufts University, and a Masters in Clinical Investigation from Johns Hopkins School of Hygiene and Public Health.

Sara Just

Sara Just is Executive Producer of the PBS NewsHour. Most recently she was Deputy Director of the Washington Bureau of ABC News and prior to that, she oversaw all political and DC-based coverage for ABCNews.com, the broadband cable channel, ABCNewsNow, and ABC’s mobile platforms. In that capacity, she also managed partnerships, sales and content initiatives to drive traffic, visibility and innovation at ABC News digital. A veteran television producer, she previously served as ABC’s Acting Washington Bureau Chief and for 17 years worked as a senior producer and producer at ABC’s "Nightline."   She is the recipient of nine Emmy Awards, two duPont Silver Batons, two  Peabody Award, and an RFK Journalism award for coverage of a range of stories from presidential campaigns, to conflicts in the Middle East, natural disasters, the racial divide in America, as well as arts and features.

Stephen LaMontagne

Steve is CEO of Georgetown Cupcake, the celebrated gourmet cupcake bakery located in Washington, DC and whose owners, Katherine Berman and Sophie Kallinis LaMontagne, are the subjects of the hit series DC Cupcakes on the TLC Network.  Since 2008, Katherine and Sophie have expanded Georgetown Cupcake with locations in Bethesda, MD, New York City/SoHo, Boston/Newbury St, and Los Angeles. Georgetown Cupcake ships its cupcakes nationwide and offers over 100 flavors.  Prior to joining Georgetown Cupcake, Steve worked for 11 years in the nuclear security field, including six years at the Department of Energy’s National Nuclear Security Administration where he led U.S. efforts to develop advanced nuclear detection technology. He holds degrees in Public Policy and International Affairs from Princeton and Harvard Universities and lives with his wife in Arlington, VA.

Rich Lane

Richard I. Lane, is a founding principal of West, Lane & Schlager (WLS), is an active professional in the commercial real estate industry, where his primary focus is the representation of law firms. Prior to forming WLS in 1996, Rich worked at the commercial real estate firm Grubb & Ellis for seven years. He works extensively in downtown Washington, DC, as well as in the suburban office markets in Virginia and Maryland.

Amanda Orr

Amanda Orr is an accomplished communications consultant with more than 15 years of experience developing and implementing public relations strategies for some of the world’s leading companies as well as many innovative startups.  She is recognized by her clients as a successful writer, strategist, media relations tactician with an emphasis in the entertainment, digital media and technology industries.

She is also a freelance writer and has been published in several local newspapers, magazines and online outlets. She is a graduate of Smith College in Northampton, MA and lives in Washington, DC with her husband and two children.

Richard Mintz

Richard Mintz counsels companies, countries and institutions in managing communications and issues around high-profile crises and special situations. His specialty is in assessing and managing political risk around cross-border mergers and acquisitions.  Currently, he is advising the United Arab Emirates in its recovery from the Dubai ports controversy by developing and managing a comprehensive U.S. public diplomacy and issues management program. He also works closely with Arabian Gulf, European and Russian companies investing in the United States.

Hugh Panero

Hugh Panero, Chairman of Hope for Henry Foundation, is Owner, Yellow Brick Road Ventures LLC which consults and invests in a variety of entertainment-related companies. He is co-founder and former president and chief executive officer of XM Satellite Radio. A business leader and media entrepreneur, Hugh was a pioneer in both the cable TV and pay-per-view businesses and is credited with launching the satellite radio industry. He has served as chairman of the D.C. Chamber of Commerce, which honored him with the DC Business Leader of the Year Award in 2000 and is a board member on a number of nonprofit boards including Hope For Henry. Hugh received Bachelor’s Degrees in Government and Sociology from Clark University and has a Master's Degree in Business Administration from Baruch College.

Aziza Shad

Dr. Shad joined the Division of Pediatric Hematology Oncology, Georgetown University, as an Assistant Professor in Pediatrics in November 1995. Dr. Shad is Board certified in Pediatrics and Pediatric Hematology Oncology. She is currently Professor of Pediatrics and Oncology, and the Chief of the Division of Pediatric Hematology Oncology, Blood and Marrow Transplantation, Lombardi Comprehensive Cancer Center, Georgetown University Hospital. She is also the Director of the Leukemia Lymphoma Program and Director of the Cancer Survivorship Program. In addition, she is actively involved in the development of Pediatric Oncology Programs in Developing Countries, particularly in Asia, the Middle East, Africa and Latin America.

 

Dr. Shad is the Director of the US branch of INCTR (International Network for Cancer Treatment and Research), Chair of the Pediatric Oncology Education Committee and Member of the Governing Council of the INCTR. She is also a Senior Scientific Advisor for the International Committee for Establishment and Development of Oncology Centers (ICEDOC) and Chair of the Palliative Care Steering Committee for MECC (Middle East Cancer Consortium). She has spoken at numerous scientific meetings, both nationally and internationally, and has published in the field of Pediatric Lymphomas, Pediatric Oncology in Developing Countries and Late Effects in Cancer Survivors, a major area of her research.

Mickie Simon

Mickie Simon is a clinical social worker who has worked in community mental health at Johns Hopkins Hospital and Children's National Medical Center.  She currently has a private practice in Washington DC where she works with children, adolescents and families.  Mickie is an associate clinical professor for George Washington Universities Doctorate in Psychology program.

Laurie Strongin

For 25 years, Laurie Strongin has helped draw attention and resources to issues of emerging national significance. 

She began as a PR professional at Podesta Associates and The Kamber Group, two of Washington DC’s premier public relations firms.  Laurie then took her advocacy expertise to the issue of affordable housing, serving as the Deputy National Coordinator for the Neighborhood Reinvestment Corporation’s Campaign for Home Ownership; and subsequently running Fannie Mae Foundation’s multi-million dollar portfolio to advance homeownership counseling, foreclosure prevention, and asset-building investments. Laurie currently serves as Executive Director, Hope for Henry Foundation.

In 1996, Laurie became drawn through personal experience into the frontlines of a breakthrough medical procedure that held the promise of saving her son, among countless other children.  Turning her advocacy and media skills to that issue, Laurie participated in national medical policy panels (alongside Newt Gingrich and Dr. Bernadine Healy, among others); worked with then-House Democratic Leader Nancy Pelosi and Congresswoman Diana DeGette (D-CO) to urge Senate passage of the Stem Cell Research Enhancement Act; secured coverage of the issue on ABC’s “Nightline” and in a Sunday New York Times magazine cover story; authored “Vetoing Henry,” a Washington Post op-ed criticizing President Bush’s 2006 veto of federal funding for human embryonic stem cell research; and advocated for parental perspectives on NBC, the CBS Early Show, and MSNBC.  In 2009, when President Obama lifted the ban on federal funding for stem cell research, Laurie was one of a few dozen honored guests.

Laurie’s subsequent memoir, “Saving Henry” (Hyperion 2010), has been featured on Good Morning America, The Diane Rehm Show, The Bob Edwards Show, The Dr. Oz Show, and BBC; and featured in USA Today and The Washington Post.  Since its publication, Laurie has headlined over 60 speaking engagements across the U.S. In 2013, she received the Chairman's Special Award from Children's National Health System and the Star for Children's Award from Children's Charities Foundation.

Laurie currently serves as a member of the Executive Committee of Children's Health Board which works with Children's National Health System to improve the health and well-being of children in the Washington, DC community, particularly those most in need, through advocacy, education, prevention and early intervention. 

Susan Toffler

Susan Toffler is a leader in the field of communications consulting with more than 25 years of booking guests for CNN, ABC News Nightline and Good Morning America and nearly a decade of working with the nations top CEO's on messaging, training, crisis strategy, coaching and broadcast placement.

Her client list includes major corporations General Motors, Hilton Worldwide, McAfee Network Security, Mercedes Benz USA, PricewaterhouseCoopers, Raytheon, Johnson and Johnson, Merck, 3M, RealNetworks, Pratt and Whitney and Graphique de France.
Currently, Susan is working with Saudi Prince Alwaleed bin Talal and the Alwaleed Foundations, on North American Media Strategy.

Susan has arranged major national and international media coverage for the Chevy Volt electric car National Tour, GM Bailout and Bankruptcy, Qatar World Cup 2022 Bid Team, the Brookings Institution US Islamic World Forum, Mayor Michael Bloomberg's Mayor's Against Illegal Guns Coalition, James Cameron on Earth Day, The first Annual Eunice Kennedy Shriver Challenge, Olympic superstar Carl Lewis and basketball great LeBron James, Patrick Kennedy for his mental health campaign, media for Denzel Washington, Ron Howard, Michael Phelps and Misty Copeland for The Boys and Girls Clubs of America, the real Captain Rich Phillips, the family of Coach Joe Paterno and the No Labels "Make America Work" campaign with Governor Jon Huntsman and Senator Joe Manchin.

She is twice nominated for the Daytime Emmy Award for “Best Talk Show,” CNN & Company.